A specialist SEN nanny/support workers with a background in Conductive Education role to support a Cheeky 5 year old boy with complex, health and medical needs in Sunbury-on-Thames. Permanent contract. There will be times where the role will be isolated to just you and Rafael and other times it will be shared with Rafael’s mother.
Looking for someone who is bubbly, fun and caring. Someone who has lots of energy, loves music and going for walks. Experience in looking after children with complex health and medical needs. Experience is essential in Conductive therapy, or a similar therapy for children with neurological disorders. Rafael is currently being home-schooled.
About the child
Rafael, born on 14 July 2014, is 5 years old and has been diagnosed with Tetrasomy 5p Moisaicism and chronic lung disease; he was a pre-term baby suffering from gastro-oesophageal reflux and has a nasal gastric tube for feeding. Rafael also has atrial septal defect, congenital talipes equinovarus and congenital hypotonia. Rafael also suffers from seizures and scoliosis.
In July 2015 Rafael suffered from lobar pneumonia. In December 2015 Rafael was diagnosed with hydrocephalus so in February 2016, Rafael had a ventriculoperitoneal shunt inserted. As a result of his diagnosis and health difficulties, Rafael is oxygen dependant and has ongoing feeding problems. Further, Rafael has severe global developmental delay and is not walking, crawling, able to sit or able to go to the toilet; Rafael requires a lot of help with his mobility and to keep him active every three hours and comfortable.
Rafael is fully NG fed, all his medication and feeds are administered via NG tube.
Further, Rafael needs help with his secretions and airway management. He therefore remains under regular review by St Peter’s Hospital and St George’s Hospital. He has a history of chest infections and is susceptible to frequent illnesses, predominantly during the winter months.
Rafael is a very happy, smiley little boy who enjoys love and affection. Rafael is non-verbal but can make vocalisation sounds to express when he is happy, sad or uncomfortable. He enjoys going for walks, going swimming and listening to music.
Overview of role
The main role is to support his daily therapy and play programme and to assist his mother with his physiotherapy exercises. Rafael has complex medical needs, but he is a very happy, active boy who brings us a lot of joy.
To be considered in this role, you must be confident in:
- Conductive Therapy or Physiotherapy for children with neurological disorders
- SEN experience
- Manual handling techniques
- Carrying out medical and health care plans
- Experience working as a HCA or support worker
- Experience in Nasogastric tube feeding, epilepsy management, respiratory, oxygen, administration of medication
- Confident swimmer
- Must have a driving license
- Be a non smoker / vaper
Providing and monitoring, the following:
- Conductive Therapy, Active Movements in and out of equipment
- NG feeding
- physiotherapy (chest and mobility physiotherapy to encourage muscle strengthening and development)
- personal hygiene care needs
- hydrotherapy / confident swimmer
- medical and care administration
- medication administration
- seizure management
- nebulisation, chest physiotherapy and suctioning (as and when required)
You will be given excellent training on all health care plans. The position would suit a strong female with a background in Conductive Education. The support worker will be required to keep full and detailed records of their intervention and to follow guidance in the support plan and risk assessments.